On this page will be information on collaborations on IE activities.

Exciting news soon!

1. Database/data-field synchonisation

To aid in future collaborations, ieQ is promoting synchronisation of data-fields.

The first tele-meeting  was held on December 12th, 2019 0900 (QLD), 10.00 (NSW/Vic/Tas), 0930 (SA) for 1 hour.

 

Thank you to all who participated! Participants from every state overwhelmed expectations!

 

Summary of discussions were to have a single tier of data colection as a minimum.

The composition of this for further discussion be likely to be at least the current ICE collection field, plus follw-up to 12 months (as 1 year follow-up current ESC management guidelines) plus whether patient had formal ID involvement or MDT involvement. Other suggestions still most welcome!

A data collection pro-forma will be posted here once there is agreement on the fields to be collected.

 

The other consensus reached that day was that this synchronisation should be basis of a goal to aim for a national IE registry.

ieQ will look into possible approaches to this other the coming months.

Correspomdence in the interim will be by email (see below) with date for 2nd tele-meet to be announced soon.

 

Suggestions prior welcome via ieq@health.qld.gov.au

 

 

 

For reference, the pre-discussion page is below.

 

This section below will be deleted at end of January 2020.

Buttons here for data-field wishlist and CTS spreadsheet

Wishlist (DOCX, 21.4 KB) Surgical (XLSX, 20.2 KB)

Preliminary plans are perhaps 3 tiers of data-fields (aka AGAR) with starting tier being what a single researcher can gather/collate, a middle tier requiring 2 researchers (1 being able to interpret echo films as reports not always accurate), and a 3rd tier  (MDT tier) requiring several researchers (from different specialties) to gather data pertinent to their own specialties. This however is subject to change, dependant on discussion.

 

Discussions are mainly to ascertain the MINIMUM data fields required to gather meaningful multi-centre information on endocarditis, in an effort to find ways to reduce it’s significant mortality (which has barely budged in 3 decades). Once the fields are agreed on, sites agreeing to collate this info will be named on the ieQ website (with the tier level they are happy to do) to aid future collaborations. This is NOT a call to actually share the data, merely to synchronise our collections (and identify who is collecting) to aid researchers in (the near) future with formulating collaborative studies to hopefully rapidly reach statistical significance.

 

Through these collaborations, Australia has the potential to rapidly identify and  respond to emergent patterns of IE (perhaps even the question of whether pursuing riskier surgery improves overall outcomes?) Australian data may lead to modifying IE protocols!

 

ial in information below.

 

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